Debra groups are collaborating to develop and maintain an international eb patient registry. Why create debra international? Debra international is the central body for a worldwide network of nearly 50 national debra and eb support groups working on behalf of those affected by the genetic skin blistering condition … You can share the cpgs with your healthcare … A unique two-day study programme about the rare inherited condition epidermolysis bullosa (eb). This will be delivered by eb clinical nurse specialists and leading consultant physicians and … Debra south africa started in 2020 after around 30 years of informal patient support. The registry will allow eb healthcare professionals to capture the demographics of eb, identify … Learn more about the vision, mission, and goals of the organisation. The information and recommendations in our eb patient guides and infographics come from clinical practice guidelines (cpgs). Click on the flag to view the website, social media page, or email address of your … On this page, you can find a list of all countries where a debra, or other eb patient support, group exists. Debra international is delighted to welcome debra south africa as one of its newest member groups. Find out about the history of debra and how it has developed globally, and about the creation of debra international. The international eb congress 2026 brasil is the leading global event dedicated to advancing eb care, fostering collaboration, and driving innovation. For the first time, the event comes to … On this page, you can find information on upcoming debra and eb-related events including conferences, professional training courses, educational webinars, and awareness raising …
Debra Lee Scott: A Legacy Of Love, Loss, And Triumph Unveiling Her Life Story
Debra groups are collaborating to develop and maintain an international eb patient registry. Why create debra international? Debra international is the central body for a...
